FAQ: Why Would I Participate in an AD Clinical Trial or Study?

Whether you have a strong desire to contribute to the discovery of a treatment for Alzheimer's disease in order to benefit future generations, or you simply want to take a more proactive approach to your own brain health, there are numerous compelling reasons why getting involved in an AD clinical trial or study now can have a greater impact than ever before. 

Tipping Point

Recent advancements in disease modifying treatments, mean that for the first time ever there are ways to remove amyloid from brain before memory loss occurs.  We now need to know how to improve and best to deploy treatments. 

By participating in a clinical trial you gain access to new treatments.  By participating in an observational study you learn more about your own condition.  Most importantly selecting a clinical trial or study that is part of ATRI and ACTC, you have access to the leaders in the field who work tirelessly with Participant Advisors who are involved in making sure our research benefits you with information, support and resources you need to understand your personal risks and benefits. 

Find an Open Study

First and foremost, visit ATRI's studies webpage, to see our open and upcoming studies and see if there is a right fit for you.

Register for Future Studies

If there are no open studies that are the right fit, sign up for a registry to be invited to participate in studies and trials when they are available in your area. Registries help speed up trials by gathering a list of “willing and able” potential participants. People who sign up may be referred to specific studies but are not obligated to participate. 

Two of our such registries are:

• Alzheimer's Prevention Trials Webstudy (APT Webstudy): An online registry designed to accelerate enrollment into Alzheimer's clinical trials.  Open to individuals 50 and older.  Take online tests to assess memory and thinking skills, gain access to scores, and be notified of opportunities for in-person assessments and clinical trials.
• Trial-Ready Cohort - Down Syndrome (TRC-DS): A registry to enroll people with Down syndrome who have no symptoms of dementia to participate in future Alzheimer's disease prevention studies. Participants will undergo cognitive and clinical assessments, brain imaging, genetic and biomarker testing, and receive referrals for other studies.

If neither of those seem right for you, try finding a matching service that is available in your area. 

Contact Your Local Memory Clinics

If you would rather look more locally, check out our map of study sites that we work with to see if we have a site near you.

You can also contact an Alzheimer's Clinical Trial Consortium site, Alzheimer’s disease research center, or memory or neurology clinics in your community to ask if they are conducting any trials. 

We highly encourage anyone who's curious about participating in an Alzheimer's study to register and get involved. Together we can move toward a world without Alzheimer's.

This is part of a new Frequently Asked Questions series. If you have a question, contact us today.